The Adult Polyglucosan Body Disease Research Foundation works towards:

  • Improving the diagnosis and treatment of APBD
  • Supporting individuals and families affected by the disease
  • Increasing awareness of APBD among health professionals and the public


News & Events

We recently had our 10th Scientific/Medical Advisory Board meeting on Wednesday, December 4, 2013, in midtown Manhattan. There have been many new and exciting developments, click here to learn more

Click here to read our May 2014 Newsletter, which includes research updates as well as announcements about several new additions to our APBDRF family.
See past newsletters

Are you an APBD Patient, Family Member, or Care Giver?

Please take advantage of our monthly telephone chat sessions. While we're not medical or research staff, we're another source of support for you. In a safe and thought-filled environment, we share our histories, experiences, questions, and discoveries.
Click here to find out more about our upcoming chat