Hello, Chat Friends:

Before I announce the next chat session, I want you to know that you can do something special this week, in honor of National Rare Disease Day.

MAKE A DONATION YOURSELF AND EMAIL FRIENDS AND FAMILY ABOUT THE MILLION DOLLAR BIKE RIDE FOR RARE DISEASE RESEARCH.

*We have a bike team that’s solely devoted to raising money for APBD research.

*We have a special supporter of the APBD community who will MATCH the donations.

*The University of Pennsylvania’s Orphan Disease Center will MATCH AGAIN.
***This trifecta of opportunity is miraculous!***

Each one of us has to do what we can to make a cure happen.

Every $1 going in ends up with $4 generated for research grants to treat and cure APBD. We should not let this opportunity pass us by.
How to donate?

 

To donate, this link will get you to our Giving Page:
http://givingpages.upenn.edu/defeatAPBD

Please don’t wait. Please make your own donation and inform friends and family of this awesome opportunity.

And now, as I promised::

Our next chat session will take place on Wednesday, March 29 at:

5:00 p.m. Pacific Time
6:00 p.m. Mountain Time
7:00 p.m. Central Time
8:00 p.m. Eastern Time

Dial (712) 432-0800. Then enter access code 865672#

Very Best,
Harriet

The legal stuff:
“The chat room exists as a source of general information only. The contents discussed do not represent therapeutic recommendations or prescriptions. Users of the chat room are advised to consult their personal physicians for specific information or advice.”