Hello, Chat Friends —
Our next chat session will take place on Wednesday, March 7 at:
3:00 p.m. Hawaii Time
5:00 p.m. Pacific Time
6:00 p.m. Mountain Time
7:00 p.m. Central Time
8:00 p.m. Eastern Time
Dial our newly assigned phone number (319) 527-3511. Then, at the prompt, enter access code 865672#
Have you told your family and friends about the Million Dollar Bike Ride for rare disease research? It’s the primary source of funding for APBD research. Donations to the Bike Ride are matched dollar-for-dollar by the University of Pennsylvania Orphan Disease Center. It’s impossible to overstate the power of our presence in the Bike Ride. Go here to make a donation: http://givingpages.upenn.edu/defeatAPBD We…all of us…need to take action to find treatments and a cure. This should be Number 1 on your list.
If you have any connection in Philadelphia with folks who might enjoy riding with our bike team, the APBD Tour de Friends, let me know asap. In a new twist on the Bike Ride rules, a guaranteed invitation to participate in 2019 will be based on dollars raised and riders on the street in 2018. Again, we .. all of us … need to take actions that help us help ourselves.
Looking forward to our chat on March 7,