News Releases
APBD Tour de Friends Team Raises $100,000 During the 2023 Million Dollar Bike Ride For Rare Disease Research
We had our largest group yet: 290 eager and imaginative riders, walkers, and donors on the APBD Tour de Friends team participated in the 2023 Million Dollar Bike Ride (MDBR) on June 10. It was our eighth consecutive year [Read More]
Paul Ashley Joins the APBD Research Foundation’s Board of Directors
The APBD Research Foundation is delighted to announce that Paul Ashley has joined the Board of Directors. Paul is based in Calgary and has more than 25 years of sales and account management experience.“We are thrilled to welcome Paul to the [Read More]
Foundation Approves and Implements its 2023-2025 Strategic Plan
We are excited to share the APBD Research Foundation’s 2023-2025 Strategic Plan. This Strategic Plan is the result of efforts spanning eight months, involving our Board of Directors, members of our Scientific Advisory Board, staff, mentors, and Foundation partners [Read More]
Art Glassman and Beth Katz Join the APBD Research Foundation’s Board of Directors
The APBD Research Foundation is delighted to announce that Art Glassman and Beth Katz have joined the Board of Directors. Art Glassman is a retired estate planning and tax attorney in Minnesota. His late wife, Penny, was diagnosed with [Read More]
University of Florida and UT Southwestern Scientists Awarded 2022 Million Dollar Bike Ride Grants for APBD Research
The APBD Research Foundation is pleased to share that Matthew Gentry, PhD (University of Florida) and Berge Minassian, MD and Mayank Verma MD, PhD (UT Southwestern Medical Center) are the recipients of rare disease research grants from the University [Read More]
APBD Community Recognizes Rare Disease Day
We're excited about joining the National Organization for Rare Disorders and the broader rare disease community around the world once again in celebrating Rare Disease Day. Leading up to February 28, we asked our community to wear zebra-striped [Read More]