Board Members, Volunteers, and Part Time Staff

APBDRF is governed by a Board of Directors, assisted by an Advisory Council, which are committed to furthering research on APBD, promoting awareness in the medical community and the public, and supporting patients with the disease.

President/Board Chair
Gregory Weiss
Board Members
Susan Coddon
David Epstein
Jonathan Fram
D Goldman
Harriet Saxe
Emil Weiss
Robert Zuckerman
Robert Lipsig*


Advisory Council
Steven Cohen
Leslie Kahan
Rabbi Abraham Lieberman
Steven Merdinger


Olivia Montana, PROS Foundation
Larry Schwartz, Statistician
LD Coddon, Legal Consultant*
Dr. Paul Ratner, Drug Development Consultant*
Jeffrey R. Levenson D.D.S. CSO Chief Strategy Officer 

Consultants and Part time Staff
Sharon Steinberg, PT Executive Director
Jim Meier, Consultant


To contact a specific member of the Board, please e-mail and include their name in the subject of the message.