New Jersey Jewish News
‘Hollywood just dropped me’
Show biz photographer fights rare genetic disease
Despite his rare genetic disease, Robert Zuckerman still delights in his vocation, photography.
Jewish Link of New Jersey
Documentary at JCC ReelAbilities Film Festival to Shed Light on Jewish Genetic Disorder
Hadassah on the cutting edge of Rare Disease Research
Patient Ronson Akina was featured in the nightly news on Hawaiian TV station KGMB. As a result of the coverage of his symptoms, the foundation was flooded with requests to obtain the APBD in-home saliva test kit.
Mishpacha’s Family First magazine on Orphan Diseases
Jewish Orphan Diseases
Family First Magazine 20170718 Orphan Deseases
© Mishpacha Magazine Inc. All rights reserved
Reprinted with permission of Mishpacha Magazine
Riders Clock 12 Miles to Reach a $100,000 Goal
Penn Medicine Orphan Disease Center Newsletter
Orphan Disease Center Newsletter