News Releases
Accelerating Research and Drug Development Through Our Partnership with COMBINEDBrain
We’re excited to share that the APBD Research Foundation is now a proud member of the Consortium for Outcome Measures and Biomarkers for Neurodevelopmental Disorders (COMBINEDBrain). As an incoming member, we join over 92 patient advocacy groups working together [Read More]
Key Takeaways from our Collaboration with Costello Medical
We recently wrapped up a powerful collaboration with Costello Medical -- through the Pro Bono Call for Rare Disease Organizations -- that supported the development of critical tools needed to unite the APBD and the broader GSD IV community. [Read More]
Paving the Path to Treatment: Highlights from the APBD Biomarkers Workshop
On March 20, 2025, we hosted an APBD Biomarker Workshop that brought together over 20 APBD researchers and clinicians to address one of the most urgent challenges in developing effective treatments: identifying reliable biomarkers. Identifying biomarkers in drug development [Read More]
Raising Funds to Advance APBD Research Has Never Been More Important
We are excited to launch the 2025 APBD Tour de Friends Rally for Research Fundraising Campaign to raise $150,000.* In spite of the challenging economic climate, we are committed to raising funds to advance APBD research. Through May 16, [Read More]
Dr. Larry Arky Joins the APBD Research Foundation’s Board of Directors
The APBD Research Foundation is delighted to announce the appointment of Dr. Lawrence (Larry) Arky to its Board of Directors. Dr. Arky is an obstetrics-gynecology (OBGYN) physician with 22 years of experience in private group practice in Manchester, CT. Before [Read More]
Foundation Partners with Alex TLC and AGSD-UK to Host a Special Patient Chat Aimed at Engaging the International Community
The APBD Research Foundation is excited to partner with UK-based Alex The Leukodystrophy Charity (Alex TLC) and Association for Glycogen Storage Disease - UK (AGSD-UK) on a special APBD Patient Chat that aims to engage the global community. With this unique Chat offering, we [Read More]