Dedicated to finding a cure for Adult Polyglucosan Body Disease (APBD), while improving the lives of those affected Providing Support Finding Answers Building Community Featured ContentHave you been recently diagnosed? Did you know that misdiagnosis is a common part of the APBD journey?Managing APBD requires working with a team of healthcare professionalsFeatured Research Highlights What's New Featured Nov 19, 2025 Foundation Partners with COMBINEDBrain to Launch GSD IV BioBank Nov 19, 2025 Nov 19, 2025 Nov 13, 2025 Why You Should Get a CRID - Clinical Research ID? Nov 13, 2025 Nov 13, 2025 Oct 27, 2025 Foundation Attends n-Lorem Foundation’s Third Annual Nano-rare Patient Colloquium Oct 27, 2025 Oct 27, 2025 Oct 24, 2025 Foundation’s Executive Director Represents the APBD Community at NORD’s 2025 Breakthrough Summit Oct 24, 2025 Oct 24, 2025 Check out more Foundation News… Upcoming Events Patient Chat Join us on the fourth Wednesday of every monthMore info Caregiver/ Family Chat Join us on the second Thursday of every monthMore info Past Events APBD Tour de Friends Rally for Research More info Rare Disease Day More info Scientific Conferences More info
