Person specific
Art
Art: After Receiving a Diagnosis 5:03
Summary:
Art talks about the experience of receiving an APBD diagnosis from the point of view of a caretaker.
Art: Searching for a Diagnosis 4:41
Summary:
Art, caretaker of an APBD patient, talks about the difficulties of getting an accurate APBD diagnosis.
Art: Taking care of yourself as a Caretaker/Caregiver 5:05
Art: Being a Caretaker/Caregiver 3:35
Summary:
Art, caretaker of an APBD patient, talks about life as a caretaker and the difference between being a caretaker verses a caregiver.
Art: Advice from a caretaker 4:26
Summary:
Art gives advice on being a caretaker of an APBD patient.
Art: Living with APBD 3:22
Summary:
Art talks about daily life as the caretaker of an APBD patient
Art: Looking Towards the Future 3:02
Summary:
Art, caretaker of an APBD patient, talks about the future.
Sheila
Sheila-Searching for a Diagnosis 2:15
Summary:
Sheila, an APBD patient, talks about the journey to getting an APBD diagnosis.
Sheila-Mayo Clinic Makes a Diagnosis 2:26
Summary:
Sheila talks about how her experience at the May Clinic and finally receiving a diagnosis of APBD.
Sheila’s positive attitude critical to coping with APBD 2:59
Summary:
Sheila, an APBD patient, talks about the importance of maintaining a positive attitude.
Sheila-Thoughts and Hopes about APBD 3:02
Summary:
Sheila talks about her thoughts and hopes about being a patient of APBD.
Sheila-Lifestyle-Keeping it Simple 2:19
Summary:
Sheila, an APBD patient, talks about the importance of keeping everything simple.
Sheila loves the chat room and helps the APBDRF distribute brochures. 2:27
Summary:
Sheila, an APBD patient, talks about her involvement in the chat rooms and how she helps the APBDRF distribute brochures.
Sheila – Strategies for Coping With APBD 2:16
Summary:
Sheila, an APBD patient, talks about her strategies for coping with APBD.
Susan
Susan: Searching for a Diagnosis 3:16
Summary:
Susan’s husband is a patient of APBD. In this video Susan talks about the frustration of getting incorrect diagnoses before her husband was finally correctly diagnosed.
Susan: Experience of APBD Symptoms 1:57
Summary:
Susan’s husband is a patient of APBD. In this video Susan talks about the symptoms her husband experienced and continues to experience.
Chuck
Chuck Experience of Symptoms 2:01
Summary:
Chuck was diagnosed with APBD in 2011. In this video Chuck talks about the symptoms he experienced early on and how they developed.
Chuck 3:14
Summary:
Chuck was diagnosed with APBD in 2011. In this video, Chuck talks about what his experience has been within the last two years, how his APBD has progressed and how he lives his life now.