Susan, caretaker of an APBD patient, talks about life as the caretaker of an APBD patient, her husbands experience of APBD symptoms, and the journey to receiving an accurate diagnosis of APBD.
Chuck was diagnosed with APBD in 2011. In this video, Chuck talks about the relief of finally getting a correct diagnosis, the symptoms he experienced and how he is feeling and living currently.
Richard Buchsbaum is the Senior Data Manager at the Statistical Analysis Center/ Biostatistics Department Mailman School of Public Health Columbia University. In this video he talks about what an APBD patient registry is and the significance and value of an APBD patient registry.