Newsletter Archive

April 2017 APBDRF Newsletter – How to Leave a Mark on People- Thick organizations

Click here to read our second April 2017 Newsletter


April 2017 APBDRF Newsletter – UPenn, Million Dollar Bike Ride

Click here to read our April 2017 Newsletter


October 2016 APBDRF Newsletter – 2016 NYC Marathon Fundraiser matching grant opportunity

Click here to read our October 2016 Newsletter


September 2016 APBDRF Newsletter -Jo, Chlo and DieGO Run for APBD Research – NYC Marathon 2016

Click here to read our September 2016 Newsletter


Summer 2016 APBDRF Newsletter -Penn Medicine update-MJGH produces New APBD videos- APBD/Kindsight upcoming events

Click here to read our Summer 2016 Newsletter.


July 2016 newsletter – NEW LESSON! APBD: Adult Polyglucosan Body Disease

Click here to read our July 2016 Newsletter.


June 2016 newsletter – APBD Grant news

Click here to read our June 2016 Newsletter.


May 2016 newsletter (ii)- “LIFE THROUGH A LENS” (Short Documentary on Robert Zuckerman and APBD) at the Los Angeles Reel Film Festival- wins first prize

Click here to read our second May 2016 Newsletter.


May 2016 newsletter- We Got an Offer We Couldn’t Refuse!

Click here to read our May 2016 Newsletter.


April 2016 newsletter (iii)- RARE Patient Advocacy Symposium – Join us!

Click here to read our third April 2016 Newsletter.


April 2016 newsletter (ii)- Million Dollar Bike Ride

Click here to read our second April 2016 Newsletter.


April 2016 newsletter- APBD Research Foundation honors Dr. Salvatore DiMauro

Click here to read our April 2016 Newsletter.


March 2016 newsletter -APBDRF documentary “Life through a Lens” world premiere at Manhattan Film Festival

Click here to read our March 2016 Newsletter.


February 2016 Newsletter -APBD joins Penn Medical MDBR

Click here to read our February 2016 Newsletter.


Winter 2015 newsletter – Can “LaTKE” cute APBD?

Click here to read our Winter 2016 Newsletter.


Fall 2015 newsletter – Open Letter

Click here to read our September 2015 Newsletter.


May 2015 newsletter – 11th Annual Scientific Advisory Board Meeting

Click here to read our May 2015 Newsletter.


March 2015 newsletter – What you can do

Click here to read our March 2015 Newsletter.


Winter 2014 newsletter – 2nd Mutation Discovery

Click here to read our Winter 2015 Newsletter.


Fall 2014 newsletter – APBD/ KindSight ® – “Be a Hero”

Click here to read our Fall 2014 Newsletter.


Summer 2014 Newsletter – APBD/ Kindsight®

Click here to read our Summer 2014 Newsletter.


May 2014 Newsletter – Opening of the APBD Registry

Click here to read our May 2014 Newsletter.


Fall 2013 Newsletter – “What we are working on” & upcoming December 2013 meeting

Click here to read our Fall 2013 Newsletter.


July 2013 Newsletter – March 2013 Meeting

Click here to read our July 2013 Newsletter.


March 2008 Newsletter

Click here to read our March 2008 Newsletter.


March 2007 Newsletter

Click here to read our March 2007 Newsletter.